The Cleft Care Scotland Network brings together professionals involved in the care of people with cleft lip and/ or palate, third sector organisations and patients/families to maintain and optimise high quality cleft care.
Cleft Registry and Audit Network
The Cleft Registry and Audit NEtwork (CRANE) is a national registry and clinical audit run by the Clinical Effectiveness Unit (CEU) of the Royal College of Surgeons of England (RCS).The CRANE Database collects information about all children born with cleft lip and/or cleft palate in England, Scotland, Wales and Northern Ireland. This database was set up by the Department of Health in 2000.
Paediatric Clinical Psychology
If your child has any additional medical issues (e.g. a genetic disorder) you may be able to access psychological support from a local Paediatric Clinical Psychology service. Please tell your specialty team, GP or cleft nurse if you would like to access this.
Information, support groups, shared experiences of cleft care from patients and families, parent/peer contacts, residential weekends and events for people with cleft and their families. Email: [email protected] Tel: 020 7833 4883
Shared experiences of cleft/care from patients and families
Information on hospital facilities, travel etc
Royal College of Anaesthetists
Information about anaesthesia for parents, carers and children, including leaflets and information videos about what to expect. See also information about the Anaesthetics department at RHC.
The Teddy Hospital provides a safe environment to help prepare children/young people for any procedures they may have to undertake.
0141 452 4009 (Royal Hospital for Children, Glasgow)
Pyjama FairiesPyjama Fairies is the only UK charity to make pyjamas and surgical gowns specially designed for babies and children up to age 16 having surgery or any other associated medical test. Each garment is made in colourful, age-appropriate fabric and is designed to minimise discomfort when medical intervention is necessary.
What? Why? Children in Hospital
What? Why? Children in Hospital make videos to help children and parents prepare for hospital and answer some of their questions starting with What? and Why?
Website to share your stories, good or bad, about your care with the NHS and other organisations.